Where have the weeks gone? March literally flew by for Tyler and I and now we are committed to a very serious count down to the end of tax season!
(No worries, I am not confused... taxes aren't due till April 18th this year.)
Believe me..... the whole Blount family will be pumped to have yet another tax season behind us! But a lot has happened over the past week or so, so let's catch up!
Tyler headed to Birmingham for his last long appointment a few weekends ago and is lucky that he has such great friends who will travel with him! Here are just a select few of the pictures they took to document the trip:
They may look (and even act) like 8th graders...but I promise they aren't. But I love Adam's sweet backpack for his business trip :)
It was on this trip that he was given his last dose of VX-770 and VX-809. On his first day of testing, he did the regular routine of sweat tests, blood draws, and lung function tests. His lung function had increased to 108%! It honestly left us speechless. Now keep in mind that almost everything in the Blount household is a game, which means that it was only natural for us to bet on who would be right at the end of the trial. So when I heard these results, there may have been a victory dance on my end. Because you see, Tyler's vote from the very beginning of the trial was that he was on the placebo and mine (naturally the opposite of his) was that he was on the actual pill. And while we won't actually know the real results for several months.... I think I am right and at this point I think Tyler thinks I am too! It all changed for Tyler when he went into his second day of testing. Since he had been given his last dose of the medicine the day before, all of the same tests were run again but this time the results showed a huge difference... his lung function dropped to 100%. While the drop in lung function might seem discouraging, it is also a bright light to us because it means the medicine worked. So it is at this point in our journey that we choose to focus on the hope and the potential that this medicine may have and we pray that the research and FDA approval process will be swift! The day after Tyler got back from Birmingham, this blessing ended up in my inbox.... Proverbs 31 Devotion. God is so timely. My favorite verse from it is:
“Thus says the LORD who made you, who formed you from the womb and will help you: Fear not…I formed you; you are my servant; O Israel, you will not be forgotten by me.”
Isaiah 44:2b, 21b
Speaking of timeliness, although this may have been the busiest month of our lives, I couldn't have thought of a better time to have a visit from my parents. I love and appreciate their support in all things and I just love to see them! We spent the weekend going to the zoo, celebrating my nephew's birthday, and just hanging out. It was great and the pictures show how much fun we had!
Love his new "cheese!"
The Birthday Boy! What a special little guy!! And how cute is he???
Well that's all for now... except one little hint....
Hopefully this is our last (and honestly our first!) picture in front of our apartment. More details next time!