Tyler all packed up and walking to the car.... such pep in his step!
Dinner and....
Dessert! He had to rub this in.... he knows I love ice cream!
He made it to to the hospital! And took a picture with Colonel Sanders... his room at the hospital is located in the "chicken wing"
His awesome study coordinator. She is a blast! And a trooper to hop in on some of Tyler's pictures.
Getting the results of his PFT.... which have been amazing! His highest was 106%! The study coordinators almost don't believe the results.
Sweat tests. He has to have his sweat chloride levels checked every appointment.
Taking the 1st Dose! YAY! Cross your fingers its the real thing!
Well, that was his first trip! I get to tag along with him next time and enjoy all the fun, so more posts then!
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