When She Breathes: Playing Catch-Up

So much has happened since my last post and so I have a lot to share! And since a picture is worth a thousand words, I thought I would share a bunch of those too (and hopefully they will fill in whatever I might leave out). After the wedding we went to last weekend, we packed up and headed to Birmingham for Tyler's Monday appointment. This appointment wasn't too long so we also got the chance to hang out a little (which is a luxury during tax season)!

Remember those kid games you play on long car rides? Well I think Tyler wins for finding this truck! Also, things are much funnier when you always seem to be on a road trip!

Once we got to Birmingham we stopped for a yummy dinner!

It was an early morning, but we made it! Getting ready to do his lung function test-- which was 107%! They still can't quite believe it :)

More sweat chloride tests....

Can you tell he hates wearing this around? But they make him when he leaves his room.
I personally think he is cute either way!

But apparently, a big breakfast is worth wearing the mask for!

So far, all of our appointments at UAB have been great! Tyler results look awesome to me, although we still don't know whether or not he is on the real thing or just a placebo. I cannot say enough times how incredible the staff is there! Well, after his appointment, we headed home and back to work on Tuesday. Oh, and we also had to geared up for another wedding weekend!

At the reception

Since Tyler had to be at the wedding early for pictures, Tyler's mom and I had a chance to go look at a few houses. Like I have said before, apartment living has.... let's just say... been ever so exciting. So every free chance we get to go look at a house, we go! Tyler jokingly said to me as he walked out the door on his way to the wedding, "Go find our dream house." And honestly, I think I did! Nothing is for sure yet, but here are a few pictures of the house!

The front of the house

The living room

The kitchen

Formal Dining (currently a music room)

Bedroom #1

Bathroom #1

Bedroom #2 (currently a play room)

Long Hallway

Bathroom #2

Bedroom #3 (Tyler's office)

Master Bedroom

Master Bath (there is another sink on the other side of the bathroom-- I am just not a great photographer!)

Tyler got the chance to check out the house before we left for this last Birmingham trip. I was so glad I got to go with Tyler again because this appointment was a LONG one! On Monday we were at the hospital from 7 a.m. until 9:00 p.m.! And for a guy like my husband, sitting this long in one very square room causes stir craziness! Since this post has been terribly long, I will sum up his appointment quickly: Tyler's lung function continues to get stronger and better (and now no one on the research team is denying it). And the other big highlight of the trip is that he starts his new pill this week the XX-770 (which I explained what we hope it will do in an earlier post). We hope that his results continue to improve and that the drug can get FDA approval soon!! We have been so blessed by precious friends who continue to pray for an awesome overall outcome, for our safety as we travel, and for strength to get through the busy weeks. We love you all!