We're Breathing Easy!

It has been a LONG three weeks!  Much more so for Tyler than for me, but we made it!  We headed back to Birmingham last night (our third trip in about 8 weeks) to be there for our 8:00 a.m. appointment this morning.  Our hope was the Tyler's lung function would have increased and that all of the craziness of the last three weeks would be worth it.  But what would be the fun in telling you the end of the story, without telling you the whole story!

Like I mentioned before, this is the first time in eight years since Tyler has been on IVs.  He is so blessed with great health and this was definitely a reminder that we need to be doing everything we can do to keeping his lungs in tip top shape (which means sometimes I am going to have to be the mean one who pulls him out of bed long before the sun rises so that we can get in a nice run before work.... he hates to run!) Tyler was put on three different antibiotic IV treatments for two weeks and it sure seemed like the poor guy could not catch a break.  As soon as we made it home, after the PICC line had been put in, Tyler began to feel a tight pressure in his chest.  At first doctors thought maybe the PICC line was in wrong and so they sent us on a late night trip to the ER. Turns out, Tyler was just having an allergic reaction to the meds.  Rather than stopping the IVs though, the pharmacist just diluted his dosages which meant the IVs ran for 4 hours, two times a day.  Not fun. Luckily, I do not think he was aware of much of what was going on since the doctors put him on Benadryl to help with the reaction. I am pretty sure I have been married to a zombie for the past three weeks.  Amidst all that, he had fever and several other not so fun reactions.  All that said, when we went into the doctor's office today, I just wasn't so sure Tyler could handle it if the doctor said the PICC line was staying.

Luckily, it was taken out!  And it was like sunshine on a rainy day!  Tyler is back to his normal self and I am so, so glad.  His lung function went up 10% and it is exactly where we want it to be.  For all of you who have prayed for us and put up with our constantly change plans, we so appreciate you and really couldn't make it through times like these without you.  Let's hear it for at least eight more years of no IVs!